Friday, November 12, 2010

The race marked out for us

I hardly recognize the old blog- I've been away so long! In a limited way I have been keeping up with my favorite blogs, but the season of weirdness continues over here at our house.

Every time I thought, "Oh, I should post something on my blog" I would type it out in my head and it just sounded depressing, or annoying, or any number of negative words. So then I thought, "I'll just wait until I'm better and then post a happy update!" but since that's probably not going to happen soon, it might have been 2011 before I resurfaced. So, then I decided to wait to post until I could make light of all of this "redefining normal" stuff, and here I am today.

The fact that I can write about all this with hope (or write a complete sentence at all) probably means I'm doing better, so that's good news! Here's the low-down (or down-low...oh, wait, that's only if you have to keep it a secret, or maybe run-down...maybe I can't write a complete sentence after all): After a summer of several miscarriages and a busy year (= stress, although it didn't feel horribly stressful at the time) with buying and renovating a house and moving, having people live with us at different times, I found myself completely exhausted. At first it seemed sort of normal, and so we just sort of laid low and waited and tried to scale our activity level back. But four months and a lot of research later (not to mention drs. visits and tests) it's clear I'm dealing with adrenal deficiency, which has led to thyroid problems (which were probably already there but have now been exacerbated) and very low cortisol levels.

Blah blah blah...let me simplify:  All these things make me feel like I have the flu all the time, and if I could just get the 200 lb weight off my head maybe everything wouldn't hurt so much. Now here's the more complicated version: Cortisol affects almost every main body function, so without enough of it, the body starts shutting down. The stresses (using that term  broadly, not just emotional stress) of life are easily handled by a healthy person; a move, having a baby, change of job, etc. are all big deals and require a little more recovery time but they aren't going to knock you off your feet because your body compensates. When cortisol levels are already low, and you encounter a stressful situation, it's a different story, because your body can't make enough to keep up. I'm WAY oversimplifying here so as not to lose any more of you with the boring details. When adrenal function is minimal, the body doesn't produce enough enzymes to break down your food, so it basically rots inside of you. You don't get the nutrients, and you feel horrible, thus the appearance of food "allergies." My diet is pretty minimalistic these days, because there's so little food I can tolerate. I thought we were a whole foods family, but now that any preservative, additives, or unnatural ingredient seems to bother me (even most spices) I know what it really means to eat a whole foods diet. Here is a great article from a homeschooling mother who has researched adrenal deficiencies, fatigue, and related hormone/thyroid problems.

So, in every day life, it means that we are learning to adjust. This is not a week-long or even month-long recovery process. I am taking some meds and supplements, and seeing a doctor who is willing to approach this in a holistic way vs. saying, "You are complicated: here, have an anti-depressant. You won't BE well, but you won't complain about your problems anymore so we will all feel better." Yes, I'm a little cynical, but it's frustrating to watch yourself go downhill so fast, only to be asked if you are depressed. For the record, I'm not. I'm really very happy, I'm just exhausted, and it takes a lot more effort to be happy when you are sleep-deprived and you can hardly eat anything, and just going to Wal-mart (okay, bad example...Wal-mart is always energy-sucking...) book club means you have to spend a day recovering from the stimulation and the being out at night (even if it was only until 9:30pm). WH has been so gracious to let me sleep in until 7:30am every day, which is even more generous with the time change because the kids seem to have no comprehension of Daylight Savings. If only we lived in Arizona. He unloads the dishwasher, get the kids dressed, makes breakfast, and leaves me ready to face the day with as little work as possible. I know, he's wonderful. Sometimes sitting up is too exhausting, and so I end up laying down throughout the day. I've tried to exercise several times in the last few months and it always left me wiped out for days. I'm trying to be faithful with a yoga dvd that is mostly just stretching, and the Winsor pilates video on good days. You'd think exhaustion would lead to sleeping all the time, but the truth is, some people respond to adrenal problems with insomnia. I am sleeping 7-8 hours a few times a week; the rest of the nights are restless. I'm hopeful that will be resolved soon with a new med.

It's just so weird, because we've always felt like less is more as far as medicine goes, and even though I'm taking the natural versions of everything out there (Floradix vs. iron Rx, Armour thyroid vs. Synthroid) it is still going to take a host of medicines, supplements, and vitamins to get me back on my feet. Denying that won't help me get better any faster (I'm finally admitting it).

Having more long-term health issues has required a lot of patience, not only on my part, but possibly more so for my family and church. It's hard for me to out of the loop and unable to serve others, but it's also hard to be the one who's not sick. Lately I've been meditating on Hebrews 12:1, "Therefore since we are surrounded by such a great cloud of witnesses, let us lay off everything that hinders, and the sin which so easily entangles, and let us run with perseverance the race marked out for us."

So much packed into those verses, but I have to keep reminding myself that this race, with what seems like so many detours and valleys, is exactly what God has marked out for me. This is my race. Everyone is dealing with their own race, God is writing each of our stories, and we just need to persevere and work and pray daily to throw off the sin which entangles us and keeps us from looking to Jesus, the author and finisher of our faith. One day we will be finished with the race, and no more perseverance will be needed. And we will rest. And it will be refreshing, and perfect.

It seems this blog has changed faces in the course of the year. It used to be a place of projects and ideas, recipes and kitchen adventures. I'm still doing projects, still experimenting in the kitchen (although the recipes tend to be gluten-free, so not appealing to the masses), and even sewing when I have a surge of energy. But mostly I'm just maintaining and trying to heal. Thanks for your patience if I owe you a call, or an email, or a letter, or a borrowed book. I am committed to being well, and look forward to being back soon. And if I can get the batteries out of Little T's birthday present and back into the camera, I might even post some pictures. :)

Tuesday, October 26, 2010

AWOL

Hello blog friends. Yes, I'm (mostly) alive. 

We are enjoying the fall colors but some unusually warm weather. It seems like Christmas is just around the corner but it's 70 degrees outside.

There- I've talked about the weather...hmmm, what else?

Oh, where have I been. You didn't notice I was gone? That's okay, Mom. I know you are busy.

Things have been up and down here. I thought my health issues would clear up with a few visits to a new doctor, but low and behold they have not. I had a small break-through two weeks ago when I decided to cut out all gluten from my diet (after being told by the doctor that everything looked normal...to which I wanted to say, "Everything but ME!" Gotta love test results...) and found myself relieved of about 75% of my symptoms. But gluten is in EVERYTHING, and trying to weed it out is detective work. Work that is hard to do when your symptoms include a very foggy brain, forgetfulness (what did I just put in those muffins??) and an energy level measuring in at negative ten. So, I'm not really sure if it's the gluten, or preservatives of some kind, or some other environmental allergen. I think I've stayed away from gluten for the last two weeks, but I've had several things that said "May contain trace amounts of wheat." I'd like to think I'm not really that sensitive, but who knows. When I think back to what I was eating when I first cut out gluten it was mostly plain old meat and veggies and fruit, with a lot of brown rice thrown in for good measure.So we're going back to that plan for now. And I will say that this experiment has helped me to diversify my grains...my bulk food shelf, which consists of glass jars, has doubled in the last week!

When I do have a good day or a burst of energy, I find myself not wanting to sit at the computer, but usually buzzing around the house playing catch-up. Life does go on, and we've continued to have abbreviated school days (mostly just phonics and reading, and not for hours on end because that can be exhausting, too...) and a lot of playing around the house. It's been good for me to be around the kids so much: I get to see how they interact more than if I was busy in the kitchen or doing my own projects. We've been able to tackle discipline issues that are subtle but fierce. And my soon-to-be 2 year old has turned into a book worm! We are memorizing the poem, Block City, by Robert Louis Stevenson, and he even has the last word of most of the lines memorized (he's a genius, I say).I just spelled genius wrong (a typo, for sure) so I guess that means he doesn't get it from me.

This has been an unexpected quiet season...we flew like madmen from April until August and then hit a brick wall. I'm ready to be back on my feet, accomplishing more than just laundry and dishes, but for now I'm working on being content with my limited sphere. I do have an appointment next week with a doctor several hours away who specializes in the endocrine system and natural hormones, so that may provide us with some answers.

So, I'll leave you with a picture (because it's the only one we've taken in the last few weeks) from our family photo shoot last week...
Don't worry, our yearly picture will include everyone's heads.

And the next time I get around to it (haha, Grandpa Glenn...I still have the one you gave me) I will share with you a tip from a friend on managing children's "treasures" and memorable stuff that multiplies and makes room organization a bear.

Saturday, October 9, 2010

The week in pictures

Coloring= his new favorite pastime


the family ham
Getting ready for winter and entertainment, all in one

Our fall garden is full of green beans! Don't you remember being a kid and pretending you had braces?







Have a great weekend!